en-us https://www.intensedebate.com/users/2386855 Comments by Julia http://www.thinkingautismguide.com/2018/05/autistic-commonality-and-illusion-of.html#IDComment1062249162 <# Thu, 24 May 2018 12:31:52 +0000 http://www.thinkingautismguide.com/2018/05/autistic-commonality-and-illusion-of.html#IDComment1062249162 http://www.thinkingautismguide.com/2013/03/gym-hell.html#IDComment592541758 I'm a little confused as to the relevancy of this comment. A writer describes the hell of an unmodified gym class. Someone responds, describes the accommodations her sons receive, and says that for them, gym class is enjoyable. This does not disprove the article--it is, if anything supporting evidence. :/ Mon, 11 Mar 2013 17:20:55 +0000 http://www.thinkingautismguide.com/2013/03/gym-hell.html#IDComment592541758 http://www.thinkingautismguide.com/2013/02/self-injurious-behaviors-sibs-lets.html#IDComment568837411 I just want to emphasize that for a lot of people, ESPECIALLY people who don't have access to other forms of communication, headbanging and similar SIBs can be a response to pain or illness. If someone is smashing their head into the wall over and over again, they need a *thorough* examination to rule out migraines, seizure activity, vision problems, ear infections, tooth pain, etc etc etc. MRIs, anything and everything. Mon, 11 Feb 2013 19:22:15 +0000 http://www.thinkingautismguide.com/2013/02/self-injurious-behaviors-sibs-lets.html#IDComment568837411 http://www.thinkingautismguide.com/2012/07/recognizing-ableist-language-in-autism.html#IDComment412622272 Neither the autistic nor the disability community is in anything approaching clear accord regarding much of this post. The DD community is pretty strongly in agreement that the r-word is a slur, but the rest? There's significant disagreement and a general trend, in fact, away from the surface-level changes advocated here. I'm not fond of how this post papers over it or prescribes language policing as the solution. It's intellectually dishonest powerplay. (Not a criticism of you, Shannon. Just letting you know that there's much more diversity of thought here than the two posts would like to be known.) Tue, 31 Jul 2012 21:39:45 +0000 http://www.thinkingautismguide.com/2012/07/recognizing-ableist-language-in-autism.html#IDComment412622272 http://www.thinkingautismguide.com/2012/07/i-wish-whole-world-had-interaction.html#IDComment400133279 One of the things I *really* liked about Autreat is that I could say "I can't chose" or "tell me where to sit" and someone would, no big deal, no lengthy analysis of my personal neurosis, just, helpful. Thu, 12 Jul 2012 02:23:37 +0000 http://www.thinkingautismguide.com/2012/07/i-wish-whole-world-had-interaction.html#IDComment400133279 http://thinkingautismguide.blogspot.com/2012/06/imfar-2012-anxiety-in-youth-with-and.html#IDComment371856047 The studies I know for adults with AS diagnosis puts the rate for anxiety at over 90%. If language and IQ are indeed *not* predicative (which would correspond with every piece of anecdotal evidence I have, so I do hope the study gets replicated successfully,) then I'd expect the end figure to be somewhere in there. Which makes painful sense. Fri, 1 Jun 2012 16:25:28 +0000 http://thinkingautismguide.blogspot.com/2012/06/imfar-2012-anxiety-in-youth-with-and.html#IDComment371856047 http://thinkingautismguide.blogspot.com/2012/05/autism-in-ireland-protesting-service.html#IDComment368372331 Incredibly disappointed in TPGA. Protesting service cuts can be done without referencing or relying on ableist and dehumanizing imagery and messages about autistic people. Whether or not that's how the sign was *meant,* that's what it, and its subsequent viral fame and framing, *did.* That is the only way it could have had an effect. The only reason it made this much noise is because of the dominant ideology. Nuance may have gone into the making of the sign--*may* have, did Ben make it *himself,* was it *his* idea and wording?--but it sure as hell wasn't being referenced when the image went viral. Services and supports are constantly, internationally, being cut when *more* are needed, and that's a human-rights travesty and something we need to be talking and agitating about. Why can't we have those conversations when people aren't being killed or cure isn't being demanded? Autistic people deserve at least that courtesy. We can do better. I'm not going to respond to comments here, because, based on past experience, I don't expect this conversation to go anywhere at all. But for the record, I live in a state where DD services have been decimated, where my friends with severe disabilities receive no services, where people who have expressed competence with an AAC device are denied funding for one and thus a voice, where I can't even be placed on a waitlist and am trapped at home with no supports for me or my brother. This is not a hypothetical or philosophical issue to me. I understand the reality every day. And I still find the way these conversations about supports and cuts are conducted to be completely unacceptable, disrespectful, and, ultimately, responsible for those cuts. We deserve better. Sun, 27 May 2012 16:57:44 +0000 http://thinkingautismguide.blogspot.com/2012/05/autism-in-ireland-protesting-service.html#IDComment368372331 http://thinkingautismguide.blogspot.com/2012/04/mustafa-and-autism-acceptance-month.html#IDComment350991691 I love seeing how these questions have been adapted in different ways! I know a couple of people who communicate through choice-making, it's great to see that mode represented. Mon, 30 Apr 2012 02:21:05 +0000 http://thinkingautismguide.blogspot.com/2012/04/mustafa-and-autism-acceptance-month.html#IDComment350991691 http://thinkingautismguide.blogspot.com/2012/04/paula-c-durbin-westby-and-autism.html#IDComment348555680 Paula, it sounds like you have a phenomenal relationship with your son, and that makes me hopeful. Thu, 26 Apr 2012 16:29:15 +0000 http://thinkingautismguide.blogspot.com/2012/04/paula-c-durbin-westby-and-autism.html#IDComment348555680 http://thinkingautismguide.blogspot.com/2012/04/emma-zurcher-long-and-autism-acceptance.html#IDComment346001225 Moves Like Jagger is the BEST song to stim too. (Emma, I love your string! I have some beads, but I never thought about modifying them like you do.) Mon, 23 Apr 2012 18:38:32 +0000 http://thinkingautismguide.blogspot.com/2012/04/emma-zurcher-long-and-autism-acceptance.html#IDComment346001225 http://thinkingautismguide.blogspot.com/2012/04/matt-friedman-and-autism-acceptance.html#IDComment336374599 Hey, I'm another autistic who's obsessed with language, stories, and "structuring ideas and information, and effective ways of getting a message across!" *waves* For what it's worth, I think your doodles are very effective. Tue, 10 Apr 2012 23:48:20 +0000 http://thinkingautismguide.blogspot.com/2012/04/matt-friedman-and-autism-acceptance.html#IDComment336374599 http://thinkingautismguide.blogspot.com/2012/03/dont-let-your-children-grow-up-in-world.html#IDComment314881776 I chose that phrase because it was emblematic of the entire comment, which derailed what should have been a conversation about a murder into yet another complaint about adult autistics vs NT parents. It's massively disrespectful. This is neither the time nor the place. And I can't imagine anything more "out of context" than that choice--or anything more appropriative, disrespectful, and flat-out hateful than comparing hate speech against autistics to substantiated concerns about the way parents talk about their disabled children. It's incredible. The comment section for this post is a disgrace, and a perfect illustration of why so many adult autistics feel unsafe. We can't even mourn our own murders. Tue, 13 Mar 2012 04:32:54 +0000 http://thinkingautismguide.blogspot.com/2012/03/dont-let-your-children-grow-up-in-world.html#IDComment314881776 http://thinkingautismguide.blogspot.com/2012/03/dont-let-your-children-grow-up-in-world.html#IDComment314857430 "but even more heartbreaking to me - all the animosity towards parents of autistic kids." This is one of the most disrespectful ways to respond to a murder that I can imagine. The reason for this "animosity," incidentally, would be comments like these. Tue, 13 Mar 2012 03:44:57 +0000 http://thinkingautismguide.blogspot.com/2012/03/dont-let-your-children-grow-up-in-world.html#IDComment314857430 http://thinkingautismguide.blogspot.com/2012/03/dont-let-your-children-grow-up-in-world.html#IDComment313952060 In what universe is this an appropriate or relevant response to a post about a murder? Mon, 12 Mar 2012 01:28:34 +0000 http://thinkingautismguide.blogspot.com/2012/03/dont-let-your-children-grow-up-in-world.html#IDComment313952060 http://thinkingautismguide.blogspot.com/2012/02/kate-winslets-autism-awareness-project.html#IDComment293593824 There's really no need for scare quotes around "intellectual disabled" or "cognitively impaired." Those are real disabilities, not dirty words. Thu, 16 Feb 2012 02:49:36 +0000 http://thinkingautismguide.blogspot.com/2012/02/kate-winslets-autism-awareness-project.html#IDComment293593824 http://thinkingautismguide.blogspot.com/2012/02/kate-winslets-autism-awareness-project.html#IDComment291604245 I'm curious to know what kind of input the nonspeaking autistics mentioned here have had in the formation of these segregated communities. Carol, your comments are pretty much spectacular. Too many to quote here. Mon, 13 Feb 2012 19:49:35 +0000 http://thinkingautismguide.blogspot.com/2012/02/kate-winslets-autism-awareness-project.html#IDComment291604245 http://thinkingautismguide.blogspot.com/2012/01/dsm-5-autism-criteria-clarifying-impact.html#IDComment274123381 Thank you, TPGA. Wed, 25 Jan 2012 16:15:46 +0000 http://thinkingautismguide.blogspot.com/2012/01/dsm-5-autism-criteria-clarifying-impact.html#IDComment274123381 http://thinkingautismguide.blogspot.com/2012/01/culture-of-abuse-autism-care-in-france.html#IDComment272555133 Hypothermia, restraint, and human rights violations kinda cancel out any deep-pressure associated benefits, generally. Tue, 24 Jan 2012 01:03:20 +0000 http://thinkingautismguide.blogspot.com/2012/01/culture-of-abuse-autism-care-in-france.html#IDComment272555133 http://thinkingautismguide.blogspot.com/2012/01/touch-autism-and-special-needs-on-fox.html#IDComment272554271 This is my concern as well. It would be awesome if a show could have a disabled or autistic lead and really explore issues of disability and autism....without needing to say BUT IT'S COOL, HE'S A SUPERHERO. We don't need to have our existence justified or apologized for. Tue, 24 Jan 2012 01:02:04 +0000 http://thinkingautismguide.blogspot.com/2012/01/touch-autism-and-special-needs-on-fox.html#IDComment272554271 http://thinkingautismguide.blogspot.com/2012/01/if-you-cant.html#IDComment267969388 They put me in stage management and general tech (sound! I love doing sound!) because I loved theater and the theater kids were more tolerant than anyone else but I couldn't control my body well enough to act. I turned out to be surprisingly good at it. List, scripts, and obsessively tracking data and details? Yes please. Wed, 18 Jan 2012 19:45:28 +0000 http://thinkingautismguide.blogspot.com/2012/01/if-you-cant.html#IDComment267969388