gdp's Comments

A New Beginning: First there was an Ending : Migraines and RSD

Sat, 29 Mar 2014 22:59:05 +0000

My RSD was from a hand surgery also. But the migraines I had suffered from my entire life.

Trudy Thomas
Host of \"Living With HOPE\" radio show
Fridays' 9am pac and Monday's 4 pm pac
The Body, Mind and Spirit Network

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Subject: A New Beginning: First there was an Ending - New comment on: Migraines and RSD

A New Beginning: First there was an Ending : What is RSD? Reflex Sympathetic Dystrophy

Thu, 25 Apr 2013 21:52:03 +0000

Absolutely Bree. Check out www.powerofpain.org and www.rsdsa.org

They are one of the great websites that specialize in helping RSD patients with information.

The have lists of doctors all over the country. Best wishes for your Mom.

Trudy Thomas
Host of \"Living With HOPE\" radio show
Fridays' 9am pac and Monday's 4 pm pac
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : Dental Problems with RSD

Wed, 5 Sep 2012 23:14:03 +0000

Not really sure. I am not on Worker's Comp and I imagine it varies from carrier to carrier. It would depend on your policy.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 7 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : Vitamins and RSD

Mon, 18 Jun 2012 12:32:04 +0000

1000 mg. of fish oil.

Many medications they give us, can cause emotional problems. Especially depression. If you have been on these for many years, you might want to talk to your doctor about trying something besides medication. That's why I finally had to stop all my medications and find other ways to cope. It took me a few months to totally get off everything and you don't want to try that alone but with your doctors help, it can be done.

Have you ever hear of Calmare therapy? It is having some amazing results for people with RSD and other conditions. It's non-invasive and the doctor can tell right from the first treatment if it will work for you. Alos, LDN (low dose naltrexone) has had some good results. It's not a narcotic or pain medication.

There are many treatments available that you may not have tried. I know it has been years for you, but even long standing cases have been helped.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 7 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : Vitamins and RSD

Thu, 3 May 2012 12:54:04 +0000

I would love to hear how it works out for you! Good luck. It is certainly worth a try. If you don't notice a difference, then you can always try other things.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 7 pm east
The Body, Mind and Spirit Network

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Subject: A New Beginning: First there was an Ending - New comment on: http://thematrix-dreammaker.blogspot.co.uk/2010/0...

A New Beginning: First there was an Ending : What is RSD? Reflex Sympathetic Dystrophy

Thu, 15 Mar 2012 13:12:04 +0000

No two patients have the same symptoms. But, check out www.rsdsa.org They have the best information available for everything to do with RSD. Great source of information. Also, www.powerofpain.org />
If you have any specific questions, I would be happy to answer them if I can.

Don't get discouraged and do not listen to people or doctors that tell you there is no hope. Many doctors do not understand RSD and how it effects your entire body; so they feel there is nothing that can be done. NOT TRUE! Find a doctor who works with RSD patients.

Learn everything you can about your condition and discuss options with your doctors. There are many treatments available that do not involve drugs or surgery. It's just a matter of being aware of your options.

Best of luck to you! Hang in there!

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 7 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : Dental Problems with RSD

Mon, 27 Feb 2012 19:40:04 +0000

Yes, I am totally disabled. I have no use of my right hand and my left is also in bad shape. I was in a wheelchair for several years but am now walking with assistance. Being home-bound is hard.

We had to take out a loan to pay for my dental work; we used up all our life's savings for treatments when I was first diagnosed in 2005. It was thousands of dollars but I could no longer eat with all my teeth broken and had got down to a dangerous weight. It was either get some dentures or go to the hospital for IV feedings every week.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 7 pm east
The Body, Mind and Spirit Network

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Subject: A New Beginning: First there was an Ending - New comment on: Dental Problems with RSD

A New Beginning: First there was an Ending : COBRA Continuation Coverage Assistance

Wed, 28 Dec 2011 19:35:03 +0000

Yes. Just get all your documentation together from all the doctors who have treated you. Each state varies on their rules, but you should apply as soon as you can because it is a lengthy process.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 7 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : What is RSD? Reflex Sympathetic Dystrophy

Wed, 14 Dec 2011 14:30:04 +0000

Usually by elimination of other conditions. There is currently no definitive test for RSD.

There is a blood test being tested, but as of right now, it's a combination of symptoms and lack of other autoimmune conditions.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 7 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : Dental Problems with RSD

Tue, 6 Dec 2011 23:54:04 +0000

The dentist I went to is not related to me. Make sure your dentist is aware of the RSD: protocol for dental work is to do it in parts and additional anesthetic. If done right, disturbing the nerves can be avoided. There are some very good articles on the internet regarding this subject.

This website has lots of articles regarding anything RSD:

http://www.rsdinfo.net/dental.htm

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : What is RSD? Reflex Sympathetic Dystrophy

Fri, 28 Oct 2011 23:26:04 +0000

Yes I am. Trudy Thomas.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : What is RSD? Reflex Sympathetic Dystrophy

Thu, 27 Oct 2011 16:56:04 +0000

That is the identical surgery I had that led to my RSD. Bone on bone in my thumbs. I had the right one fixed, then RSD set in soon after the surgery. I'll private message you about locating a doctor there.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : What is RSD? Reflex Sympathetic Dystrophy

Tue, 25 Oct 2011 16:08:05 +0000

I haven't heard of RSD starting this way, but so little is known at this point anything is possible.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : What is RSD? Reflex Sympathetic Dystrophy

Mon, 26 Sep 2011 19:00:04 +0000

I also lost many friends. They have never heard of it and think we should \"get better\". Let me see who lives in Delaware. You may have someone close to you. But, we can also talk even though I live in Las Vegas.

At one point, during my worse flare, I couldn't speak without stuttering. Also, since my teeth all snapped off, I could not pronounce words clearly. I now have full dentures.

All of us with RSD understand all your issues. No judgement at all; we support each other. I do my radio show where I bring on medical experts who deal with RSD; patients who want to tell their story and patient advocates who raise awareness. ONLY when we are feeling up to it. It is hard to stay positive, but there are so many new treatments available many doctors haven't even heard of or are so old fashioned they don't want to know.

There has been 2 pain conferences this month and tonight I am having Barby Ingle on to let my listeners know what's new and upcoming for RSD and all treatment of pain. Barby has a foundation called Power of Pain. She also has RSD. The link below my name is the url for the radio show, if you want to stop by. It's at 8pm east. Otherwise, you can listen to all the archives any time.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : http://thematrix-dreammaker.blogspot.com/2010/10/walk-mile-in-my-shoes.html

Mon, 26 Sep 2011 14:56:04 +0000

I write from the heart. Sometimes it can be very discouraging when people make insensitive remarks. It makes you doubt yourself.

There are 6-10 million people who have this condition and it is important to keep putting information out there to educate others. That's what me and so many others continue to do everyday.

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : What is RSD? Reflex Sympathetic Dystrophy

Sun, 25 Sep 2011 22:21:04 +0000

I totally agree. I started my radio show on RSD and other chronic conditions in 2008. My hands don't work work (right hand not at all) so I decided to raise awareness by talking. My show is on Mon and Fri's.

There are also some great organizations whose goal is to raise public awareness.

If you would like to do an interview on my show, let me know. I interview medical professionals, non-traditional treatments practicioners, patients and patient advocates. I want everyone to have a voice!

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : What is RSD? Reflex Sympathetic Dystrophy

Sat, 13 Aug 2011 15:55:03 +0000

Thanks Beth. I am familiar with Dr Schwartzmann; he has helped many people. You are very lucky to have him as your doctor!

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : Dental Problems with RSD

Mon, 20 Jun 2011 14:29:03 +0000

I totally agree with you. There are many good RSD organizations raising awareness and funds for research. The research being done on GLIA is very exciting. But, we do need more exposure and money for research.

We should take care of Americans first; not the rest of the world that doesn't appreciate it anyway! Just think how much could be done with the billions sent to the Arab country's that don't want it or appreciate it.

Everyone should contact congress and tell them to start taking care of it's citizens needs and stop sending billions overseas. Until every citizen is healthy and our borders are safe, stop blowing our nations wealth on a bunch on ingrates!

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
Co-Host of \"I Will Survive\" Wed @6pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : How Chronic Pain Effects Your Brain Activity

Wed, 25 May 2011 12:41:03 +0000

I have lived with Reflex Sympathetic Dystrophy for over 6 years now. I know pain; burning, intense nerve pain that never lets up. It burns 24/7. If you don't know what this condition is goggle RSD.

I lost the use of my hands and legs. I have tried ever medication know to man, had a series of stellate ganglion blocks (basically needles in my neck); many other therapy's over the years that did not work.

I tend not to judge others pain. But, RSD rates higher on the pain scale higher than cancer. So, before you judge someone, take a look around and see who you are judging. It may just be another person in pain.

However, I will never give up; never lay down and let my illness become my life. I will continue to search out treatments for people living with chronic pain until we are all cured. (RSD has no cure).

Trudy Thomas (aka thematrix777)
Host of \"Living With HOPE\" radio show
Fridays' 12 noon east and Monday's 8 pm east
Co-Host of \"I Will Survive\" Wed @6pm east
The Body, Mind and Spirit Network

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A New Beginning: First there was an Ending : How Chronic Pain Effects Your Brain Activity

Thu, 13 Jan 2011 13:58:51 +0000

There are many things you can do to compensate. Meditation, self-hypnosis, positive affirmations..With practice you can learn how to change your reactions to pain. The pain itself may always be there, but your how you respond to it can make it worse. I interview many medical professionals weekly on my radio show; some conventional and some homeopathic. The topics range from medications to OT/PT; meditation to mental health issues associated with chronic pain. There are ways to improve your quality of life; it just takes a willingness and practice. I also feel the spiritual component is essential..HOPE and FAITH