en-us https://www.intensedebate.com/users/817138 Comments by Amundsenchaos http://www.amundsenhouseofchaos.com/12-weeks-to-greater-peace-joy-love-in-your-family-giveaway/#IDComment787768698 That\\\'s awesome! I love her and her book! Thu, 23 Jan 2014 05:34:36 +0000 http://www.amundsenhouseofchaos.com/12-weeks-to-greater-peace-joy-love-in-your-family-giveaway/#IDComment787768698 http://www.amundsenhouseofchaos.com/confession-time/#IDComment727360628 Thanks Mom! Love you too! Sun, 29 Sep 2013 21:59:53 +0000 http://www.amundsenhouseofchaos.com/confession-time/#IDComment727360628 http://www.amundsenhouseofchaos.com/time4learning-review/#IDComment721582372 Thanks so much for the comment! I have not used the Activity Scheduler yet but I think I just might go take a look at it right now! Tue, 17 Sep 2013 20:32:18 +0000 http://www.amundsenhouseofchaos.com/time4learning-review/#IDComment721582372 http://www.amundsenhouseofchaos.com/memoria-press-review/#IDComment673114175 Thanks for stopping by! I love the Prima Latina so hopefully we\\\'ll be able to keep using it! Thu, 4 Jul 2013 04:02:27 +0000 http://www.amundsenhouseofchaos.com/memoria-press-review/#IDComment673114175 http://www.amundsenhouseofchaos.com/patriot-camp-2013/#IDComment672873534 Sadly the next morning we woke up to bugs in every single one. I was so mad! Oh well, live and learn I guess. Wed, 3 Jul 2013 18:47:21 +0000 http://www.amundsenhouseofchaos.com/patriot-camp-2013/#IDComment672873534 http://www.amundsenhouseofchaos.com/j-tube-surgery/#IDComment619444035 I had a hard time making the decision to have it done. So far it\\\'s been wonderful! It\\\'s so nice not to have to worry about his tubing getting ripped out. If it comes out you just put it back in or use another one. It\\\'s saved us so many two hour drives down to a hospital that will place a GJ tube. Colby\\\'s had a lot of surgeries so I don\\\'t necessarily think this one was any more difficult than others. He did have one stitch herniate and it took a little longer to heal than it should have but now it\\\'s fine. His stoma is great and we haven\\\'t had any problems at all. I know that some people have intestinal slowing after having it done but Colby has always had slow digestion since his stroke so for us it hasn\\\'t been a problem at all. I\\\'ve found that when we have a hard decision to make on a procedure and whether or not to do it I keep seeing things about it almost like it\\\'s shoved in my face until we get it done. I hope that makes sense and that you make a decision that you are comfortable with. I wish you luck and peace in your decision! Mon, 15 Apr 2013 01:45:26 +0000 http://www.amundsenhouseofchaos.com/j-tube-surgery/#IDComment619444035 http://www.amundsenhouseofchaos.com/seizures/#IDComment614978777 Impressive! That is a pretty amazing time. Tue, 9 Apr 2013 03:39:16 +0000 http://www.amundsenhouseofchaos.com/seizures/#IDComment614978777 http://www.amundsenhouseofchaos.com/colbys-story/#IDComment376847738 That would be awesome! My mom was telling me briefly about your son awhile ago. Isn\\\'t the basal ganglia insane? I mean that it\\\'s so small yet it controls basically everything or at least how everything interacts with everything else. I\\\'m glad you found my blog. I was sitting here feeling really restless and bad that I hadn\\\'t updated in so long and I figured now would be as good a time as any. Hopefully we are coming out that direction at the end of October I\\\'d love to meet you and your little man also! Fri, 8 Jun 2012 19:53:18 +0000 http://www.amundsenhouseofchaos.com/colbys-story/#IDComment376847738 http://www.amundsenhouseofchaos.com/about/#IDComment331807921 Hi Marie, Sorry I didn\\\'t answer you back very quickly. It\\\'s been busy as usual around here. I\\\'m sorry about your mom\\\'s cancer return. I have my husband taking Graviola in addition to his chemo. Keep in mind I\\\'m not a doctor it\\\'s just what I felt drawn to when I was doing research after his diagnosis. It\\\'s supposed to help the cells fight the cancer but there is very little research on it. I use Vitacost to buy mine it\\\'s in a red and black bottle with a guy on the front. As far as the ODD goes we\\\'ve got her on a couple different medications for her bipolar disorder but the most effective thing for her was going to a pediatric therapist who basically told her all the same things I\\\'d been telling her. She just needed to hear it from someone else I guess. I\\\'ve also been giving her fermented cod liver oil/butter oil from green pastures and there is some growing research on supplementing mental disorders with niacin. I have not started her on the niacin because she tends to run manic and it can make mania worse. I will probably keep it on my list of things to try with her and when it is winter again and she swings back toward a more depressive mood add it in. I hope that helps and hang in there. I know it\\\'s a rough road! Wed, 4 Apr 2012 22:13:59 +0000 http://www.amundsenhouseofchaos.com/about/#IDComment331807921 http://www.amundsenhouseofchaos.com/another-clean-mri/#IDComment305006709 Not rude, dumb or naive! We actually asked at the appointment! In the long run this class of chemo can cause leukemia. So cure one cancer to give yourself isn\\\'t really the best plan of action. They still don\\\'t know the best course for this chemo because as far as brain tumors go it\\\'s a relatively new drug in that it\\\'s been used for less than 15 years I think. Some go with lower doses for 18 months to two years and others go with the higher dose for one year which is the plan he is on. Hopefully it is the best one for us! Thu, 1 Mar 2012 00:22:50 +0000 http://www.amundsenhouseofchaos.com/another-clean-mri/#IDComment305006709 http://www.amundsenhouseofchaos.com/happy-4th-survivor-day/#IDComment224988515 Thank you so much for sharing that! I completely understand. I can remember the precise moment when the hole in my heart was put there. I took Colby to a cranial sacral therapy conference for pediatric workers once. They needed kids who needed extensive work done to train the new therapists. Anyway one of the three who were working on Colby as I held him suddenly asked me if it was okay if she included me in the session. I agreed and she gasped as she placed her hand on my back over where my heart is. She had just been touching my shoulder and working on Colby but when she moved down she actually gasped and said \\\"I don\\\'t think I\\\'ve ever met anyone before with such a big hole in their heart. This really changed who you are!\\\" I couldn\\\'t explain the feeling that I\\\'d had there ever since we found out about the stroke and as soon as she said it was like a light bulb moment. I remember thinking \\\"Oh that\\\'s what that is. A hole in my heart. Makes sense.\\\" Anyway mine isn\\\'t gray so much as a dark black hole that I can feel and I know that if I let it, it would consume me so I tuck it away and ignore it but you are right. It\\\'s always there. I don\\\'t know that I can get rid of it but I can keep it at bay and so just like you that\\\'s the choice I make every day! Anyway, thank you so much for stopping by and sharing your story. It\\\'s nice to know that there are others out there who can identify with the emotions that come from having a pre brain damaged child and a post brain damaged child. Not many people can understand that! Mon, 21 Nov 2011 03:01:10 +0000 http://www.amundsenhouseofchaos.com/happy-4th-survivor-day/#IDComment224988515 http://www.amundsenhouseofchaos.com/what-to-write/#IDComment200039969 Leesha, As I was typing this up I was thinking of you. As scary as all of this is I don\\\'t know that I could have kept it together this long if it were one of my kids. A stroke was bad enough but to add the tumor on top of it would make me a wreck. Tell Michael I said it is not allowed! No tumor growth at all is ever allowed in that little boy! Who will be my boyfriend if that happens? I admire you so much Leesha! You always have a smile on your face or in your comments (since I haven\\\'t seen you in so long!). I know it will all be okay and that days like today when I feel overwhelmed and helpless are all a part of it even when it feels like i can\\\'t keep going through so much stress and heartbreak. Love you to! Give yourself a giant hug from me! ;) Tue, 27 Sep 2011 21:31:09 +0000 http://www.amundsenhouseofchaos.com/what-to-write/#IDComment200039969 http://www.amundsenhouseofchaos.com/treatment-plan-for-johns-braincancer/#IDComment175996575 Thanks for stopping by Lynnesa! I\\\'m sorry to hear your husband has a GBM! That was my biggest fear and will probably remain my biggest fear as the olios can change their make up over time and turn into that. I don\\\'t know if it will help or not but look up the Budwig diet and hemp oil.. Oh I wish I could get hemp oil! Sadly illegal in Utah but maybe some day. Good luck with everything! Thu, 21 Jul 2011 19:12:02 +0000 http://www.amundsenhouseofchaos.com/treatment-plan-for-johns-braincancer/#IDComment175996575 http://www.amundsenhouseofchaos.com/my-husband-has-braincancer/#IDComment174216669 Thanks Amanda. We are doing good. John finished his first round of chemo on Thursday night. He\\\'s been tired but nothing else. His hair seems to be turning lighter which was not something we expected but it\\\'s not falling out so he\\\'s happy. We\\\'ll get through it like we do everything else. I hope you and your family are doing well. Sat, 16 Jul 2011 17:28:17 +0000 http://www.amundsenhouseofchaos.com/my-husband-has-braincancer/#IDComment174216669 http://www.amundsenhouseofchaos.com/its-my-sits-day/#IDComment172152546 Thanks for leaving his site. I couldn\\\'t get it to let me leave a comment so if you can would you tell them about Hyperbaric Oxygen treatments. It could help him a lot. It\\\'s great that he\\\'s still making progress. Mon, 11 Jul 2011 04:17:42 +0000 http://www.amundsenhouseofchaos.com/its-my-sits-day/#IDComment172152546 http://www.amundsenhouseofchaos.com/treatment-plan-for-johns-braincancer/#IDComment172152103 Thanks Nancy! I\\\'d sure love a big miracle but I\\\'ll take the miracle of modern medicine anyday. I would never have made it as a pioneer. Mon, 11 Jul 2011 04:15:56 +0000 http://www.amundsenhouseofchaos.com/treatment-plan-for-johns-braincancer/#IDComment172152103 http://www.amundsenhouseofchaos.com/its-my-sits-day/#IDComment172151736 It\\\'s a big website that features bloggers. They do an email interview with you and post it on their site and drive a lot of traffic to your blog. It\\\'s a networking and support site. You aren\\\'t old at all! ;) Mon, 11 Jul 2011 04:14:27 +0000 http://www.amundsenhouseofchaos.com/its-my-sits-day/#IDComment172151736 http://www.amundsenhouseofchaos.com/about/#IDComment171164999 Hi Shellie! Your sensors are spot on! We are all though my husband has not been active for years. He\\\'s working on getting his priesthood blessings restored and taking us to the temple sometime in the next year. Thanks for stopping by! Fri, 8 Jul 2011 16:48:51 +0000 http://www.amundsenhouseofchaos.com/about/#IDComment171164999 http://www.amundsenhouseofchaos.com/treatment-plan-for-johns-braincancer/#IDComment171150718 Thanks! I\\\'ve got him hopped up on all kinds of vitamins and minerals. He calls me a vodoo witch doctor when I come out him with something new! ;) Fri, 8 Jul 2011 16:03:28 +0000 http://www.amundsenhouseofchaos.com/treatment-plan-for-johns-braincancer/#IDComment171150718 http://www.amundsenhouseofchaos.com/treatment-plan-for-johns-braincancer/#IDComment171150490 Thanks! Your words are perfect and made me smile. Chronic illness is no easier than cancer no matter what it is. Anything long term and I\\\'ve found that long term for some people is two weeks ;) is hard on people so i\\\'m sure you understand. I hope that you find somethings that work for you and the people in your life. Have a great day! Fri, 8 Jul 2011 16:02:40 +0000 http://www.amundsenhouseofchaos.com/treatment-plan-for-johns-braincancer/#IDComment171150490